Commonly associated with prolonged trauma in early childhood, it’s important to know DID’s signs and symptoms—and how to seek help
August 29, 2022
Once referred to as multiple personality disorder, dissociative identity disorder (DID) is a serious mental health condition.
DID is associated with long-term exposure to trauma, often chronic traumatic experiences during early childhood. It is often misunderstood and portrayed incorrectly in popular media.
Dissociation—or disconnection from one’s sense of self or environment—can be a response to trauma. It can happen during a single-incident, traumatic event (e.g., an assault, a natural disaster, or a motor vehicle accident), or during ongoing trauma (e.g., wartime; chronic childhood abuse).
The person experiencing the trauma is so emotionally overwhelmed, they cope by dissociating—they “shut off” from what’s happened and compartmentalize the experience. Dissociating allows for a person to distance themselves from the trauma they experienced.
Keep Reading To Learn
- The truth about DID
- How DID is treated
- How you can help yourself or a loved one who has DID
What Is Dissociative Identity Disorder?
Dissociative identity disorder—a type of dissociative disorder—most often develops during early childhood in kids who are experiencing long-term trauma. This typically involves emotional, physical, and/or sexual abuse; neglect; and highly unpredictable interactions with caregivers.
Some children in such circumstances can develop DID by compartmentalizing their ongoing, traumatic experiences and then displacing them onto other aspects of their self. By doing so, they can distance themselves psychologically from pain.
To an extent, dissociation permits the child to move through life without constant reminders of distressing events.
So, how might a child start dissociating to cope with trauma?
According to Dr. Milissa Kaufman, “During early development, children possess a wonderful capacity for magical thinking. For example, some kids believe that Superman is real and that someday they will be able to fly, too.”
”Some kids may displace their own thoughts or feelings onto a personified stuffed animal or onto a personified imaginary companion: ‘I’m not worried about my first day of kindergarten, but Fluffy is!’ All of these things are completely appropriate developmentally during early childhood.”
Since a young child doesn’t know it is impossible to “turn into a different person,” such displacement of thoughts or feelings can also become a coping mechanism for children who suffer from repeated trauma.
For example, a child who experiences ongoing sexual abuse can think, “It’s too overwhelming to feel such fear. It’s too dangerous to feel such anger. It’s too real to know what is happening to my body. That’s not me. That’s someone else.”
”By doing this,” adds Kaufman, “They displace overwhelming thoughts, feelings, and memories onto different, personified aspects of self and separate from their painful circumstances. This ‘not me’ experience is the cornerstone of DID.”
Importantly, DID often allows children to maintain attachments, creativity, and the capacity for humor and reflection under extremely difficult circumstances.
However, as dissociation continues into adulthood when the danger no longer exists, it can interfere with—or even prevent—recovery from trauma.
Milissa Kaufman, MD, PhD, is a leading expert in DID and related disorders. She is the director of the Dissociative Disorders and Trauma Research Program at McLean Hospital and medical director of McLean’s Hill Center and the Outpatient Trauma Clinic.
What Is DID?
Dr. Milissa Kaufman answers audience questions and debunks myths about dissociative identity disorder.
Recognizing Signs and Symptoms of Dissociative Identity Disorder
Most people with DID rarely show noticeable signs of the condition. Friends and family of people with DID may not even notice the switching—the sudden shifting in behavior and affect—that can occur in the condition.
The subtle symptoms are often a mixture of dissociative symptoms, such as a sense of being detached from one’s own sense of self or from one’s surroundings, and post-traumatic stress disorder (PTSD) symptoms, such as flashbacks.
Someone with DID becomes skilled at displacing and personifying aspects of their experience onto other aspects of their self. This shifting happens throughout life, even once the traumatic situation has passed. This can occur even in circumstances when a trigger for dissociating isn’t harmful.
People with DID often experience or show symptoms related to:
- Disordered eating
- Self-destructive behavior
- Substance misuse
- Memory gaps
- Suicidal thoughts or self-harm
Someone with DID may feel very detached from experiences or even forget doing or saying something that others witnessed. The gaps in memory, confusion, and stress of living with the subjective sense of having “not-me” experiences can become distressing.
Those with DID often experience depression, mood swings, and difficulty fully trusting in relationships.
Although people with DID have a strong internal sense of identity fragmentation, it is a common misconception that people living with DID display “multiple personalities.” In fact, in most individuals, the condition is hidden.
According to a 2010 Psychiatric Times article, only 5% of people with DID exhibit obvious switching between identity “states.”
If you believe someone close to you may have DID, gently share your observations. Encourage them to see a mental health professional, or if they are under your care, share your concerns with their primary care provider or therapist, if they have one.
Dissociative Identity Disorder Is Treatable
The overarching goal of DID treatment is to maintain stability, rather than moving quickly into focusing on processing trauma.
In contrast to PTSD stemming from a single event that happened in adulthood, DID is associated with repeated traumatic events during critical developmental periods in early childhood.
Because of this, typical treatments for PTSD, such as a time-limited course of prolonged exposure or eye movement desensitization and reprocessing (EMDR), are not the standard of care for DID.
DID is best treated with a three-phased approach that involves focusing on safety and stability, processing traumatic events, and eventually being able to go through life without dissociating. Any phase of the process can take several years, and often the phases overlap.
In addition to symptoms of PTSD and dissociation, individuals with DID often need treatment for co-occurring issues. These include depression, suicidality, self-harm behaviors, disordered eating, and body image distortions.
The first step in treatment aims to reinforce the safety of the person with DID with a focus on more serious symptoms like self-harm or suicidal ideation.
In treatment, a licensed mental health expert helps the person with DID to replace any harmful coping techniques they use with healthier options. At the same time in treatment, the clinician works with the patient to identify PTSD symptoms they may be experiencing.
They also start the process of teaching ways to understand that dissociated identity states represent important feelings, thoughts, and memories that, while very difficult to accept, are part of a whole self.
The second step focuses on identifying, addressing, and working through traumatic memories.
Doing this under clinical care helps the patient build distress tolerance and manage reactions to traumatic memories in a safe environment. Doing so with the help of a mental health professional is key to avoid re-traumatization.
As symptoms of PTSD and co-occurring issues stabilize, DID patients begin to integrate compartmentalized experiences.
They begin to understand that painful thoughts, emotions, and memories they mentally packed away as children—however difficult they may be—really do belong to them. They learn to connect their life experiences to their sense of self. They begin to feel as though they have a whole and coherent narrative of their own life.
Lastly, DID patients learn to live their life now without relying on dissociative defenses to cope. As new and different coping methods are used successfully, they will likely experience greater confidence, increased self-awareness, stronger self-regulation skills, and more emotional stability.
Treatment must also focus on individuals’ struggles to feel safe in close relationships and the world. People with DID often view themselves as damaged, somehow at fault for the abuse sustained during childhood, and unworthy of care.
Because of this, the development of a trusting alliance and safety and symptom management during treatment takes time. Trauma-focused work must be paced gradually.
In Her Own Words
As a participant in McLean’s Deconstructing Stigma campaign, Olga shares her story of struggling with DID.
Debunking Myths About Dissociative Identity Disorder
Given the amount of misinformation around the condition, it’s possible that what you’ve heard about DID isn’t true.
Myth: DID Is Obvious
Despite what the media may portray, it is not easy to tell when someone has DID. However, the experience of having a fragmented sense of self and “not me” thoughts, feelings, memories, and even body image, feels very real for people with DID.
Characters portrayed in the media as having DID are often shown wearing uncharacteristic clothes, displaying wildly changing mannerisms, or appearing to be a different person altogether. People with DID rarely express their identities in such obvious ways.
Myth: People With DID Experience Psychosis
Many believe that those with DID have psychosis—a lost sense of reality. In fact, unless people with DID are in the throes of PTSD and are being highly triggered, they have an intact sense of reality.
According to a 2018 article in Dialogues in Clinical Neuroscience, “When not overwhelmed by post-traumatic intrusions, DID patients show … a hyperdeveloped capacity to observe their own psychological processes.”
Myth: People With DID Are Dangerous
Many people with DID have been portrayed as dangerous individuals who perform violent acts under different “personalities.”
People with DID are no more violent or dangerous than the general population. Their symptoms and behaviors reflect that they are afraid of dangerous situations.
In fact, due to their histories of childhood trauma, many people with the condition feel frightened and do their best not to call attention to themselves.
Myth: DID Is a Rare Condition
Because DID has been misunderstood and is hard to detect, it is often called a rare condition. In fact, DID occurs in approximately 1% of the general population. This is the same percentage of people who have schizophrenia.
Myth: DID Cannot Be Effectively Treated
DID is a serious mental health condition. It’s hard for many therapists who are untrained in dissociative disorders to recognize it. But with effective treatment from mental health providers who are trained in trauma and dissociation or able to receive consultation with someone trained, people with DID can and do recover. People with DID can live full and productive lives.
Myth: Health Care Providers Convince Patients of Past Trauma That Isn’t True
One of the controversies about DID is a theory that mental health professionals bring DID on by suggesting false accounts of past abuse to gullible patients. This suggests that therapists who obtained information from the media might somehow lead their patients into thinking they have histories of childhood abuse when abuse never happened.
However, a 2016 publication in the Harvard Review of Psychiatry states that no study has ever supported this “fantasy model.” Instead, several studies confirm that DID develops in individuals who have experienced severe trauma. DID is also repeatedly found in people who are unaware of the disorder and in cultures where the condition is unknown.
McLean Is Here to Help
McLean is a leader in the treatment of DID and trauma-related disorders. Call us today at 877.964.5565 to find the care you or a loved one needs.
Supporting Someone Living With Dissociative Identity Disorder
While a diagnosis of DID can be confusing or scary at first, it can be managed by better understanding the condition. We’ve compiled several top tips to help manage the disorder, whether it’s your own diagnosis or the diagnosis of someone that you care about.
1. Learn About Dissociative Identity Disorder
One of the best ways you can support someone’s DID journey—whether your own or a loved one’s—is to learn more about the condition.
Find books and documentaries about DID. Connect with organizations, such as the National Alliance on Mental Illness (NAMI) to learn more about DID and join support groups.
2. Listen and Offer Support
If a loved one is diagnosed with DID, talk to them. Let them know you are open to listening to their experiences to the point they feel comfortable sharing. You can start a conversation by simply saying, “I’m here for you. How are you?” You don’t need to solve their problems. Just listen.
If you are the person with DID, ask your friends or family members if you can talk about how you’re feeling, or what’s happening in your life. Create a support system within your social circles.
3. Connect With Support Services
If you or a loved one needs help finding a therapist or other services, there are ways to find treatment and support.
4. Meet Them Where They Are
It can feel confusing to interact with a loved one who is dissociating. While signs of dissociation tend to be subtle, sometimes people with DID may suddenly appear disengaged, frightened, or spacey. If you notice such behaviors, remain calm and remember that people with DID often dissociate automatically as a way of feeling safer.
If you are the person with DID, you can provide as much information as possible to your loved ones about the condition so that they are more able to be as supportive as possible when it comes to condition management.
5. Address Self-Harm and Suicidal Behavior
If you or someone you care about are hurting themselves or struggling with suicidal thoughts, it is urgent that you or they receive help.
Call the National Suicide Prevention Lifeline at 800.273.9255 or 988, connect them with professional help immediately, or take them to the nearest emergency department.
Find access to additional suicide prevention resources.
6. Help Prevent Triggers
Triggers are external stimuli that cause distress. Examples of triggering situations include being in a crowd or hearing a particular word or a loud noise. Potential triggers are limitless and are highly individual.
For someone with DID, triggers can provoke flashbacks and dissociation. You can learn about your loved one’s—or your own—triggers by asking directly or by observation. With this information, you can help prevent distressing situations.
7. Take Care of Yourself
When we support people who have experienced trauma and/or have mental health conditions, it is important to take care of ourselves, too. Such self-care can include quiet time or engaging in restorative activities such as creating art or exercising. Self-care can also include seeing your own therapist and participating in support groups.
Seeking Help for DID
Dissociative identity disorder is treatable. If you or someone you know is experiencing symptoms, the first step is to address it with a licensed health care professional or a mental health facility, like McLean.
If symptoms are serious and point to signs of self-harm or suicidality, call the National Suicide Prevention Lifeline at 800.273.9255, connect with professional help immediately, or go to the nearest emergency department.
Want More Info?
Looking for even more information about DID? You may find these resources helpful.
Interesting Articles, Videos, and More
- Podcast: The Sum of Her Parts With Olga Trujillo
- Deconstructing Stigma: Adrian’s Story
- The Secret and Life-Changing Impact of Early Childhood Abuse: Dissociative Identity Disorder
- Deconstructing Stigma: I’m a Survivor
- Understanding the Impact of Domestic Violence
- Find all of McLean’s resources about DID
These organizations may also have useful information and community supports:
International Society for the Study of Trauma and Dissociation
An international, non-profit, professional association, ISSTD develops and promotes comprehensive, clinically effective, and empirically based resources and responses to trauma and dissociation. Primarily a professionally oriented society, they welcome both professionals and members of the general public.
New England Society for the Treatment of Trauma and Dissociation
NESTTD provides a community for professionals who understand the profound effects of severe and prolonged trauma and who share an excitement about learning new developments in this rapidly expanding field. They offer accessible professional training delivered by distinguished clinicians and researchers in the field of trauma.
- Dissociative Disorders